Tackling Ultrarare Disease Drug Loss
Vision & Mission
The Japanese Foundation for Rare Disease Research (JFRDR) is being set up as a non-profit to tackle current and future drug loss, making use of low-cost capital in the form of government-backed grants.
About Us
Meet the founders and officers of JFRDR — a team with international expertise in drug development, policy and management driving the organisation.
Our Activities
Resolving current and future drug loss by adopting three approaches: obtaining Japanese rights to approved drugs, including Japanese patients in global pivotal trials, and supporting selected translational projects in Japanese academia.
Tackling Ultrarare Disease Drug Loss
The Japanese Foundation for Rare Disease Research (JFRDR) is being set up as a non-profit to tackle current and future drug loss. It aims to make use of low-cost capital in the form of government-backed grants and thus provide drugs which would otherwise not be available to Japanese patients at a cost that ensures the Japanese Social Security systems remains financially sustainable.
JFRDR aims to be a key change agent in the Japanese biopharma ecosystem, by aiming to vitalise and professionalise Japanese patient organisations, educating the public as to the realities of living with rare diseases and contributing through the projects it supports to building critical translational and CMC infrastructure that can also be leveraged by commercial biopharma.