Privacy Policy

Who We Are

This website is operated by the Japanese Foundation for Rare Disease Research (JFRDR).

  • Website URL: https://jfrdr.org
  • Organization: The Japanese Foundation for Rare Disease Research
  • Contact: info@jfrdr.org

What Personal Data We Collect and Why

Contact Forms

When you contact us through our contact form, we collect your name, email address, and message content. This information is used solely to respond to your inquiry and is retained for up to one year after the inquiry has been resolved. It is not used for marketing purposes.

Cookies

This website uses the following cookies:

  • Google Analytics cookies (_ga, _gid, etc.): Used for web analytics. These cookies have a maximum lifespan of 2 years.
  • WordPress cookies: Used when administrators log in. These are not set for general visitors.
  • Language preference cookie (pll_language): Used to remember the display language selected by the user.

You may configure your browser to refuse cookies; however, some features of this website may not function properly if cookies are disabled.

Analytics

This website uses Google Analytics, a web analytics service provided by Google, Inc. Google Analytics uses cookies to collect anonymous traffic data. This data does not personally identify you and is used to understand and improve site usage.

You can opt out of Google Analytics tracking by:

For more information, please refer to:

Who We Share Your Data With

The Foundation does not share your personal data with third parties except in the following cases:

  • When you have given your consent
  • When required by law
  • When necessary for the protection of life, body, or property, and it is difficult to obtain your consent

Anonymized access data is sent to Google as part of our use of Google Analytics.

How Long We Retain Your Data

Information submitted through the contact form is retained for up to one year after the inquiry has been resolved. Analytics data is retained for up to 26 months (Google Analytics default setting).

What Rights You Have Over Your Data

If you have provided personal data on this website, you have the right to request disclosure, correction, deletion, or suspension of use of your personal data held by the Foundation, including the right to receive an export file of your personal data. Please contact us using the information below to make such a request.

Where Your Data Is Sent

Through our use of Google Analytics, anonymized access data may be transmitted to Google servers, including those located in the United States. Google ensures data protection through EU Standard Contractual Clauses (SCCs). For details, please refer to Google’s Privacy Policy.

Contact

For inquiries regarding the handling of personal information, please contact us at:

The Japanese Foundation for Rare Disease Research
Email: info@jfrdr.org